When Kristen DeAndrade initially imagined what a camp for people living with skeletal conditions and their families might look like, as someone who had little experience with camps, she wasn’t sure how it would all come together. But the Founder and President of the Little Legs Big Heart Foundation had a clear vision for the objectives of bringing the community together in such a setting.

“I wanted it to be a home away from home – a place where people could make those connections that truly matter, have the hard conversations, where kids could form bonds with other kids, teens, their camp counselors,” Kristen says of what would become Camp Ellellbee. “And honestly, it has exceeded my expectations.”

Held for the first time throughout this fall, Camp Ellellbee has brought together more than 60 families from the U.S. dwarfism community for weekends filled with traditional camp activities, laughter and connections meant to broaden support networks and encourage open dialogue about living with genetic skeletal conditions.

Hear from Kristen and others who attended and supported Camp Ellellbee to learn what the experience meant to them.

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